Well, she had a wonderful night! Which is a huge praise and a complete answer to prayer! She didn't vagel at all yesterday which is HUGE! They lowered her Oxygen to 30% and down to a 6 on the ventilator settings. She is in Volume Support Mode which is where she's breathing on her own (on the vent) but will be backed up if she holds her breath or doesn't take a breath...she did great on that last night, since I've been here this morning its gone off several times and she's gone into backup mode and had to be bagged one time this morning, but so far, she's doing well. Her right arm has "mottling" its where her Arterial Line was. Apparently its where the artery spasmed with that line in, so yesterday they removed that line and have been having to do nitroglycerin paste on her arm to hopefully help with the splotchy, bruise-like look of her whole right arm. It's caused by capillaries not getting enough oxygen, and it causes her profusion to not be real good...it's looking better, but please keep praying for the circulation in that arm. If all continues as it is, we may be able to try and take her off the vent in the next few days! Right now, its the RSV that's still holding things up, so please pray for that virus to be gone from her body. She's taking the feeds really well, and nothing leaked from her chest tube so they pulled that out yesterday! And they got her back on breast milk and she's doing great! So as you can see we're making improvements! The thing Dr. Gupta and Garcia have been most disappointed in, is the amount of secretions they are sucking out of her lungs, so please join us in praying for those to diminish!
Over the weekend we went to Breakfast with Santa, a fundraiser for ACH. The boys had a blast, they got to eat their favorite breakfast, pancakes and sausage; see the firemen (who served us breakfast) and sit on Santa's lap...what more could a kid ask for?
Sorry this one is blurry...
Riding in Santa's Sleigh...
Lovin' on Rudolph...
Playing on the firetruck...
This is hilarious...Miss Teen Arkansas tried to take her picture with the boys, Lawson's face is priceless!
Heading up to the playground while Mom, Dad, Adam and I traded off getting to see Ava Jane because the boys aren't allowed on the floor. They loved getting pulled around in the wagon...it was a great day for them (pancakes, Santa, firetrucks, wagon and playground time), couldn't get any better!
I couldn't help but celebrate all her accomplishments! She got her NIRS off (it reads the oxygen level to her brain) so we put on a big ole Christmas bow and headband to help cover up the shaved area where they had to put in a scalp PIV. Stink! Doesn't she look festive and cute! And how about those little Mudpie ruffle socks? Too cute!
We love our little Christmas gift...She's a fighter and is doing so good! We can't wait for her to be all well again! Please keep praying, God is answering and we are humbled by His gracious provision!
Girl I saw that you commented on my blog post and my heart nearly hit the floor. I have been thinking about you non stop. With the ongoing stuff we go through with Sawyer I seriously CANNOT imagine what you are going through. I am so sorry. I was bawling tonight to Andrew b/c I am so scarred from seeing Sawyer suffer at all b/c of what he has gone through in the last two years and honestly I think you are going through something I can't even imagine. Praying for you constantly and I am so confident in our healing heavenly Father. Glory to Him for all our hardships even when it seems hard to understand seeing these precious babies suffer. Please call me if you ever want to chat. Compared to you what we have been through and are going through what we have been through is probably minimal.. BUT I can probably relate on a certain level when it comes to medical trauma and drama. Praying for sweet Ava Jane!
ReplyDeleteBless Ava Jane and bless you. I'm loving her Christmas ensemble. I know it does a mamas heart a curious good to see her baby have a sense of normalcy- thank goodness for feathers and ruffle socks.
ReplyDeletePraying for that lovely life of hers. Praying for complete healing. Praying for strength and endurance for your sweet family. Praying for peace for the boys with their little worlds out of whack. And praying for the peace that transcends all understanding to comfort you from our almighty father. You are loved and Miss Ava's life is spoken for by the king of kings and Lord of lords. Thank goodness we can set her at His feet and know the faithful God we serve. Continuing to pray ...
Court, I wish I could be there with you. Know that I'm thinking of y'all so often and praying continually. "The Sovereign Lord is my strength; he makes my feet like the feet of a deer, he enables me to go on the heights." Hab.3:19 You are a wonderful mom. It is beautiful to see your love for your children and God working through you in His strength and comfort. We love you guys!
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